by Jamie Holloway | Sep 10, 2012 | Auto-immune, The Magnificent Journey
I am participating in the virtual conference about invisible illness this week and let me tell you there are some great speakers this year. Check it out at: http://invisibleillnessweek.com/virtual-conference-2/ I am writing this post for Erwin. I met Erwin and his...
by Jamie Holloway | Sep 9, 2012 | Auto-immune, The Magnificent Journey
Monday is the start of Chronic Illness awareness month. There is so much I want to write about, express, and I see some amazing ideas from amazing writers that share their own experiences. I will be taking a word and expanding my own illness and life surround a...
by Jamie Holloway | Sep 9, 2012 | Auto-immune, The Magnificent Journey
Happy Sunday! I am happy to say that I am home. Yes, it is 4:30 in the morning. I have to get up in order to suction and nebulize myself in order to keep the mucus thin enough so that I do not get giant clogs. Whatever it takes to keep me breathing, moving forward,...
by Jamie Holloway | Sep 6, 2012 | Auto-immune, The Magnificent Journey
“The Lord is my rock, my fortress, and my deliverer; my God is my Rock, in whom I take refuge. He is my shield and the horn of my salvation, my strong hold.” Psalm 18:2 My pediatric trach I had to have for a few days. Now I have my T-tube in. I’m...
by Jamie Holloway | Sep 2, 2012 | Auto-immune, The Magnificent Journey
A conversation I had with my friend Summer while she, Karen, and I were driving from Vancouver/Longview to Seattle so that I can get the help I needed for my Subglottic Stenosis in my throat and the adventure I had in the ER. You can read about it in my post before...
by Jamie Holloway | Sep 1, 2012 | Auto-immune, The Magnificent Journey
1. The illness I live with is: I have a Vasculitis disease called Wegener’s granulomatosis 2. I was diagnosed with it in the year: was finally diagnosed in 2011 3. But I had symptoms since: 2008 4. The biggest adjustment I’ve had to make is: The biggest adjustment I...
by Jamie Holloway | Sep 1, 2012 | The Magnificent Journey
I am in Seattle again. Last night a gigantic clog decided it needed to come up through my t-tube at one in the morning. I suctioned and irrigated for an hour before I decided to call 911 for help. I knew I needed to yank the T-Tube out with my clamps and since I have...
by Jamie Holloway | Aug 20, 2012 | Inspiring Nutrition, The Magnificent Journey
When I went to my doctor appointment on Friday I found out from my blood work that I am low on Iron again. Since I was younger I have always been anemic and I either had to get an IV, take a horse pill, or eat extra foods that had a power house of iron in them. Right...
by Jamie Holloway | Aug 19, 2012 | Exhilarating People, The Magnificent Journey
I woke up Saturday morning tired from my long trip to Seattle the day before. After eating a yummy breakfast, cooked by my amazing and talented sister Vickie, we ate eggs, bacon, and cheese wrapped in a tortilla we called our aunt Marie. I still am not able to talk on...
by Jamie Holloway | Aug 17, 2012 | Auto-immune, The Magnificent Journey
What a day! I drove three hours to Seattle in order to visit my Rhematologist and my ENT. I love my doctors. They truly do seem to care, even if things happen that I don’t like. Dr. Gardner, my Rhematologist went well. I finally succumbed to the advice of my sisters...
by Jamie Holloway | Aug 14, 2012 | The Magnificent Journey
(My view from the picnic table where I ate my yummy sandwich) I woke up in a crappy mood. I have been home from the hospital for a week now and my voice is taking its sweet time coming back. I am glad I had the surgery, don’t get me wrong. I love being able to breath...
by Jamie Holloway | Aug 13, 2012 | Auto-immune, The Magnificent Journey
“If you are ready to find real fulfillment, now is the time to start your new journey.” Oprah Winfrey What does my journey look like now that I got a permanent solution to my subglottic stenosis? Let me be clear about one thing. I am not happy about the solution that...
by Jamie Holloway | Aug 10, 2012 | Auto-immune, The Magnificent Journey
I am home. I am happy to be home. Melissa one of the wonderful nurses at the hospital told me she didn’t want me to leave, but I did want to leave. I missed my bed, my space, my people, not that the people at the hospital weren’t wonderful. I had some amazing nurses,...
by Jamie Holloway | Aug 8, 2012 | Auto-immune, The Magnificent Journey
I am writing this blog post hooked up to many different machines in order to be healthy. I have the humidifier hooked to my throat, I have to IV’s one in each arm and I have the oxygenator hooked up. Different noises, different reasons for each device to be hooked up...
by Jamie Holloway | Aug 7, 2012 | Auto-immune, The Magnificent Journey
Have you ever received messages that just make you think? I have, messages for me can be in the lyrics to a song, a line in a movie, a quote, a book I am reading, something a person is saying to me, or even a thought that pops into my head. Tonight, while sitting in...
by Jamie Holloway | Aug 6, 2012 | The Magnificent Journey
Looks like I will be staying a couple more nights in the hospital. I will be having another surgery tomorrow in order for them to lower the T-stent in my throat. Currently, the upper part of the t-stent is pressing on my voice cords and making it difficult for me to...
by Jamie Holloway | Aug 5, 2012 | Auto-immune, The Magnificent Journey
Happy Sunday! If you suspect that I am still in the hospital, you would be correct. I am still here. One of the student doctors came in and she told me that I will be going home for sure tomorrow. I had to make a couple of phone calls, one of course to Myron, my...
by Jamie Holloway | Aug 4, 2012 | Auto-immune, The Magnificent Journey
I woke up this morning expecting to be heading home to Vancouver, but once again my plains were derailed by someone else. I have to stay two more days in the hospital simply because Dr. Hillel wants me to be absolutely sure that I can take care of my t-stent tube. I...
by Jamie Holloway | Aug 4, 2012 | Auto-immune, Exhilarating People, The Magnificent Journey
This is my last night in the hospital. I am up in the middle of the night because I had to suction my t-tent and also take some pains meds. My throat is sore. I feel as though I swallowed a porcupine whole. Vickie is asleep on a cot next to me. I doubt she is getting...
by Jamie Holloway | Aug 3, 2012 | Auto-immune, The Magnificent Journey
Greetings from the University Of Washington Medical center here in Seattle Washington. Happy to say that I made it through my surgery and I now have my T-stent in and I feel like a million bucks. I can breathe fully. I can smell. When Dr. Hillel and his team went in...
by Jamie Holloway | Aug 1, 2012 | Auto-immune, The Magnificent Journey
\\ Photography by Myron Freiburger I am all packed for my hospital stay which starts today. Kris, my fabulous sister in law and I will be leaving Vancouver at 7 in the morning to reach our destination in Seattle which computes to a three hour trip. The doctor said I...
by Jamie Holloway | Jul 30, 2012 | Inspiring Nutrition, The Magnificent Journey
Last night I spent two in half hours on the phone with my sister Carri. I came out of this conversation realizing three things about myself. One, I have to commit to an eating plan. Two, everyone’s is different with regards to how their body process’ food, maintains...
by Jamie Holloway | Jul 24, 2012 | The Magnificent Journey
The last couple of years my hair does not grow back fast and I have been losing a lot of my hair due to my disease and the medications that I have to take in order to maintain a balance. I shaved it. For women, hair is their identity. It showcases their beauty, why do...
by Jamie Holloway | Jul 23, 2012 | The Magnificent Journey
I am amazed how often God brings someone into my life when I am stuck in a rut. The last couple of months I have been in a ditch in my mind. I am an over thinker and it gets me into trouble. It also stops me from accomplishing many things that I want to. One of those...
by Jamie Holloway | Jul 18, 2012 | Auto-immune, Exhilarating People, The Magnificent Journey
Prompted by a blog post by Jeff Goin’s in promotion for his new book that will be coming out. It made me think. How has my life been wrecked and turned out good? Three years ago I woke with no ability to breathe properly and severe joint pain. I sounded like a...
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