Rare Disease Day

  Today is Rare Disease Day. There are over 7,000 rare diseases and I have one of them. All of the diseases are different, but the one thing that is the same is that it affects people no matter what your race or religion is. The effects of being ill often times...

Lofty Goals

Yep, another post about my new exercise program pulmonary rehab. I started reading the booklet this evening, after I took a two hour nap and took a soak in the bathtub to help my legs feel better. I am also having a flare-up this week. My wrist, middle finger on my...

Tea Anyone?

Before you start reading I would like you to grab a cup of tea or coffee get comfortable and then read on. Saturday February 23rd I had the pleasure of going to Myrtle’s Tea House in Ridgefield Washington for an Angel Wings Ministries fundraiser. What an experience,...

Life Is Good!

Just a quick update on my getaway to my hometown of Longview, I am enjoying my time here. Karen is a riot. She makes me laugh and she is an amazing woman with a huge heart. Summer is a hard worker and a fabulous cook. Even though there have been some crazy moments not...

Take 2

Take 2: Leeza Gibbons I have never been a big fan of Leeza Gibbons. I also thought she was the big Hollywood diva who looked perfect, had everything perfect, was that the reality? Come to find out it isn’t. I appreciate her candor in sharing her flaws with us. She...

Progress Is Here

I got the phone call I have been waiting over a week for. Pulmonary rehab will be starting for me on February 26th. I am excited. I am looking forward to moving and breathing at the same time. I will be in rehabilitation for three months and then I can move on to...

My Garden

Warning: This is a long post and I mean long. Sometimes this lady has to get things off her chest and this was one of those times. If you are brave enough to read it, thank you and if not that is okay with me. Have an excellent day. I am writing to you all in a...

Happy Valentine’s Day!

I am utterly amazed with the huge blessings that miraculously show up on my doorstep literally. Slowly, as I am able to accumulate household items my home is becoming my home, a sanctuary that I can enjoy. This is something new to me as before when I owned my own...

Musings

Joy is the human beings noblest act. Thomas Aquinas Joy is something I am learning to acknowledge and to appreciate in my life. Many things bring me joy, snuggling with my cat Nicholas, reading amazing books, an amazing unexpected conversation with a neighbor,...

Wounds

I am still dealing with a painful belly wound that is located at my belly button. It is a big gaping hole; the surgical assistant stuck a Q-tip inside of the wound to see how far it can go and to check out how it is doing. Ouch! The white gunk that is coming out is...

Weightloss!

“A Course In Weight Loss” Marianne Williamson Williamson looks at weight loss and health in a spiritual way. Loving you, before you can shed the pounds she believes and is probably correct you must learn to live in love with the body you have now being a fat ass and...

Hungry: A Review

“Hungry” Dr. Robyn L. Smith What I learned from reading this book is nothing new for me, but a reminder of what I have learned on my own journey with my disease. Her disease is different than mine, but we shared the shame unmasking of what was projected upon us from...

Getting To Know You!

I have had the tune “Getting To Know You” from the Yul Brenner’s movie “The King and I” with Maureen O’Hara from the late 50’s early 60’s stuck in my head. I am getting to know my stomach again. I used to know my stomach well, but that all changed when I had my...

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