by Jamie Holloway | Sep 28, 2012 | Auto-immune, The Magnificent Journey
I am in pain today. My back and sides are hurting making it difficult for me to walk. I did not feel like doing anything at all today. Myron walks in his usual way full of energy and vinegar and challenged me to get up out of bed. My negativity can go on; I have not...
by Jamie Holloway | Sep 28, 2012 | Auto-immune, The Magnificent Journey
Lately, I have found myself getting angrier as time goes by; I get frustrated by the fact that I have an incurable disease. That I have to suction, lavage, nebulize daily several times a day so that I do not have a huge clog come up and then I have to save my own life...
by Jamie Holloway | Sep 12, 2012 | Auto-immune, The Magnificent Journey
I decided that I will be meditating on bad nights and self-care. I am not talking about those nights when you are full of emotions because the neighbors just won’t stop playing their loud Twisted Sister records all night and you have to act like Dee Snider and bust...
by Jamie Holloway | Sep 10, 2012 | Auto-immune, The Magnificent Journey
I am participating in the virtual conference about invisible illness this week and let me tell you there are some great speakers this year. Check it out at: http://invisibleillnessweek.com/virtual-conference-2/ I am writing this post for Erwin. I met Erwin and his...
by Jamie Holloway | Sep 9, 2012 | Auto-immune, The Magnificent Journey
Monday is the start of Chronic Illness awareness month. There is so much I want to write about, express, and I see some amazing ideas from amazing writers that share their own experiences. I will be taking a word and expanding my own illness and life surround a...
by Jamie Holloway | Sep 9, 2012 | Auto-immune, The Magnificent Journey
Happy Sunday! I am happy to say that I am home. Yes, it is 4:30 in the morning. I have to get up in order to suction and nebulize myself in order to keep the mucus thin enough so that I do not get giant clogs. Whatever it takes to keep me breathing, moving forward,...
by Jamie Holloway | Sep 6, 2012 | Auto-immune, The Magnificent Journey
“The Lord is my rock, my fortress, and my deliverer; my God is my Rock, in whom I take refuge. He is my shield and the horn of my salvation, my strong hold.” Psalm 18:2 My pediatric trach I had to have for a few days. Now I have my T-tube in. I’m...
by Jamie Holloway | Sep 2, 2012 | Auto-immune, The Magnificent Journey
A conversation I had with my friend Summer while she, Karen, and I were driving from Vancouver/Longview to Seattle so that I can get the help I needed for my Subglottic Stenosis in my throat and the adventure I had in the ER. You can read about it in my post before...
by Jamie Holloway | Sep 1, 2012 | Auto-immune, The Magnificent Journey
1. The illness I live with is: I have a Vasculitis disease called Wegener’s granulomatosis 2. I was diagnosed with it in the year: was finally diagnosed in 2011 3. But I had symptoms since: 2008 4. The biggest adjustment I’ve had to make is: The biggest adjustment I...
by Jamie Holloway | Aug 17, 2012 | Auto-immune, The Magnificent Journey
What a day! I drove three hours to Seattle in order to visit my Rhematologist and my ENT. I love my doctors. They truly do seem to care, even if things happen that I don’t like. Dr. Gardner, my Rhematologist went well. I finally succumbed to the advice of my sisters...
by Jamie Holloway | Aug 13, 2012 | Auto-immune, The Magnificent Journey
“If you are ready to find real fulfillment, now is the time to start your new journey.” Oprah Winfrey What does my journey look like now that I got a permanent solution to my subglottic stenosis? Let me be clear about one thing. I am not happy about the solution that...
by Jamie Holloway | Aug 10, 2012 | Auto-immune, The Magnificent Journey
I am home. I am happy to be home. Melissa one of the wonderful nurses at the hospital told me she didn’t want me to leave, but I did want to leave. I missed my bed, my space, my people, not that the people at the hospital weren’t wonderful. I had some amazing nurses,...
by Jamie Holloway | Aug 8, 2012 | Auto-immune, The Magnificent Journey
I am writing this blog post hooked up to many different machines in order to be healthy. I have the humidifier hooked to my throat, I have to IV’s one in each arm and I have the oxygenator hooked up. Different noises, different reasons for each device to be hooked up...
by Jamie Holloway | Aug 7, 2012 | Auto-immune, The Magnificent Journey
Have you ever received messages that just make you think? I have, messages for me can be in the lyrics to a song, a line in a movie, a quote, a book I am reading, something a person is saying to me, or even a thought that pops into my head. Tonight, while sitting in...
by Jamie Holloway | Aug 5, 2012 | Auto-immune, The Magnificent Journey
Happy Sunday! If you suspect that I am still in the hospital, you would be correct. I am still here. One of the student doctors came in and she told me that I will be going home for sure tomorrow. I had to make a couple of phone calls, one of course to Myron, my...
by Jamie Holloway | Aug 4, 2012 | Auto-immune, The Magnificent Journey
I woke up this morning expecting to be heading home to Vancouver, but once again my plains were derailed by someone else. I have to stay two more days in the hospital simply because Dr. Hillel wants me to be absolutely sure that I can take care of my t-stent tube. I...
by Jamie Holloway | Aug 4, 2012 | Auto-immune, Exhilarating People, The Magnificent Journey
This is my last night in the hospital. I am up in the middle of the night because I had to suction my t-tent and also take some pains meds. My throat is sore. I feel as though I swallowed a porcupine whole. Vickie is asleep on a cot next to me. I doubt she is getting...
by Jamie Holloway | Aug 3, 2012 | Auto-immune, The Magnificent Journey
Greetings from the University Of Washington Medical center here in Seattle Washington. Happy to say that I made it through my surgery and I now have my T-stent in and I feel like a million bucks. I can breathe fully. I can smell. When Dr. Hillel and his team went in...
by Jamie Holloway | Aug 1, 2012 | Auto-immune, The Magnificent Journey
\\ Photography by Myron Freiburger I am all packed for my hospital stay which starts today. Kris, my fabulous sister in law and I will be leaving Vancouver at 7 in the morning to reach our destination in Seattle which computes to a three hour trip. The doctor said I...
by Jamie Holloway | Jul 18, 2012 | Auto-immune, Exhilarating People, The Magnificent Journey
Prompted by a blog post by Jeff Goin’s in promotion for his new book that will be coming out. It made me think. How has my life been wrecked and turned out good? Three years ago I woke with no ability to breathe properly and severe joint pain. I sounded like a...
by Jamie Holloway | Jul 15, 2012 | Auto-immune, Exhilarating People, The Magnificent Journey
The last couple of days have been a roller coaster ride of emotions that stem from being rejected. I wrote about having to go to the University Of Seattle in order to visit my ENT to see what the next steps will be concerning my Subglottic Stenosis. I believed that I...
by Jamie Holloway | Jul 6, 2012 | Auto-immune, Books/Music, The Magnificent Journey
The Power Of Self-Healing Dr. Fabrizio Mancini In February, my care provider saw Dr. Phil’s TV talk show and this author was on hocking his book. I purchase the book after Myron suggested that I might be interested in reading it. I have always been interested in...
by Jamie Holloway | Jun 30, 2012 | Auto-immune, The Magnificent Journey
I do not normally write about my fears and such on my blog because it gets boring reading about someone who only talks and whines about their illness. I do it once in a while when I need to truly get it off my chest. This is one of those times. The last two weeks I...
by Jamie Holloway | Jun 25, 2012 | Auto-immune, The Magnificent Journey
I woke up this morning in a blissful mood. I spent my weekend in contemplative thought, because in my spirit I felt restless and unsure about where my life is going. I made some choices that I will be implementing soon. The reason for my restlessness is due to the...
by Jamie Holloway | Jun 23, 2012 | Auto-immune, The Magnificent Journey
I am looking forward to August 4th, my friend Debra Lawson-Bean has graciously accepted and registered me to go to day conference at OHSU. This conference is for individuals and their care providers who suffer from an auto-immune disease. Vasculitis will be one of the...
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