The Road

by | Mar 3, 2013 | Auto-immune, The Magnificent Journey

“I will point out the road that you should follow, I will be your teacher and watch over you. Don’t be stupid like horses and mules that must be led with ropes to make them obey.” Psalms 32:8-11 I am the most stubborn woman. It takes me a long time to make a decision...

Rare Disease Day

by | Feb 28, 2013 | Auto-immune, The Magnificent Journey

  Today is Rare Disease Day. There are over 7,000 rare diseases and I have one of them. All of the diseases are different, but the one thing that is the same is that it affects people no matter what your race or religion is. The effects of being ill often times...

Lofty Goals

by | Feb 27, 2013 | Auto-immune, The Magnificent Journey

Yep, another post about my new exercise program pulmonary rehab. I started reading the booklet this evening, after I took a two hour nap and took a soak in the bathtub to help my legs feel better. I am also having a flare-up this week. My wrist, middle finger on my...

Getting To Know You!

by | Jan 31, 2013 | Auto-immune, The Magnificent Journey

I have had the tune “Getting To Know You” from the Yul Brenner’s movie “The King and I” with Maureen O’Hara from the late 50’s early 60’s stuck in my head. I am getting to know my stomach again. I used to know my stomach well, but that all changed when I had my...

Resting

by | Jan 27, 2013 | Auto-immune, The Magnificent Journey

Yesterday I spent the entire day relaxing in order for my body to heal. I also took a water pill and been peeing a lot in order to get the water retention gone from my body. I see the evidence in my right foot and I hate seeing my foot swollen. It is ugly. I retain...

Challenges

by | Jan 19, 2013 | Auto-immune, The Magnificent Journey

Yesterday was a challenging day, actually the whole week was. Every single day I had something to do and even today I have something to do. I am tired, but I feel good at the same time about what I am accomplishing. It is a bit of a contradiction, but sometimes things...

My Heart Still Beats

by | Jan 16, 2013 | Auto-immune, The Magnificent Journey

I am in Longview. I got here yesterday evening after my doctor appointment. I got my heart results. The good news, my heart is healthy, the correct size, the valves are open, and I am pumping correctly. The heart rate going up while I am walking around is due to my...

Divine Purpose

by | Jan 5, 2013 | Auto-immune, The Magnificent Journey

“You have to be willing to consider that, regardless of the trauma, there is a divine purpose that moves in tandem with every even in your life, painful and joyful.” Carolyn Myss I would love to be assured that the trauma’s that I have suffered in the last four years...

One Milestone

by | Jan 4, 2013 | Auto-immune, The Magnificent Journey

Another mile stone that is happening on my journey is that I can now put my Jaxton trach into the stoma without needing the mirror to guide me. I also learned the value of lube in making sliding the sucker in easier for me. Considering that I have had my trach or some...

Swollen, But Hopeful

by | Dec 24, 2012 | Auto-immune, The Magnificent Journey

Walking down the hallway towards the rec room I felt my body communicating its struggle to breathe, heart racing, difficulty in getting oxygen in the lungs as I moved my body, and a slower than usual pace all leads me to the conclusion that my inflammation is back...

Be Still My Beating Heart!

by | Dec 20, 2012 | Auto-immune, The Magnificent Journey

Wednesday morning I went to the Legacy Good Samaritan to get an Echo Cardiogram done of my heart. I got to see and hear my own heart, what an experience that was. I woke up with not wanting to get up. I wanted to stay curled up in my bed sleeping with my cat. I forced...

Rainy Days And Mondays!

by | Dec 18, 2012 | Auto-immune, The Magnificent Journey

“I now know what it is to feel as vulnerable as a human being can feel. I was ready to become dependent on others’ care, which, for someone as independent as I am, was no comfort. Having to say if this what I must accept, so be it, can feel like chewing glass, but not...

A Year In Review

by | Dec 16, 2012 | Auto-immune, The Magnificent Journey

I had an opportunity to view my timeline on Face Book. It opened my eyes to the fact that I had been through a lot in 2012. Six surgeries, getting a caregiver, learning to live with a trach and then a t-tube in my throat, doing the Christmas Angel Telethon, and...

A New Challenge!

by | Dec 15, 2012 | Auto-immune, The Magnificent Journey

Another step towards my healing I am wearing a turquoise blue heart monitor. The reason you may be wondering is because when I had my chemo treatment on November 13th, 2012 a month ago to be exact. I started having heart palpitations and went to the ER. I remember...

Disappointments!

by | Dec 1, 2012 | Auto-immune, The Magnificent Journey

I awoke at 4 AM looking forward to getting my results from the biopsy I had done at the end of October to see if I have IGG4. Arriving at my destination sitting in the doctor’s office anticipating the chance to finally know what I have and not just a bunch of guesses....

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