I haven’t written anything for awhile I needed to take a break. Life started throwing punches at me and it took all my energy to duck and weave. As I am writing, Nicholas my guard cat is watching over me as I write. He has been a great comfort to me as I face my challenges. I am going to list and share about my resilience through them.
1. Pressure wound, yes, I got one above where my trach hits my chin. Not fun. And the repercussion from having one is painful and annoying. First my wound hurt so I saw my favorite ENT. Where he prescribed an ointment and to keep a bandage over it. Of course, the adhesive from the bandage caused another wound. Ugh! My caregiver had to tell her boss, so they called my case manager who sent an RN to look at it and that caused me to have to get evaluated again. What a mess one simple wound can cause.
2. After I got my new evaluation, Catholic Community Services got onto me about my weight and my wheel chair. Because I gained weight from a medication, Gabapentin, and I and the wheel exceed 20 pounds. My caregiver can’t push me or lift my wheel chair into her car. That means I have to forfeit my miles that I get from the state and now figure out how to get my shopping and get to my medical appointment. I almost fired CCS and went back to having an independent provider. I didn’t go through with firing because I like the caregiver I have now and they are hard to find. I can use the medical ride voucher system that I have used before. And my caregiver can push my wheel chair back to my apartment and I can use the electric carts at the store. I still feel attacked because of my weight gain and it fills like I am being punished because a medication caused me weight gain. I respect my caregiver and so even though I am deeply hurt by CCS, I will work on my what would Jesus do towards my caregivers bosses.
3. Lyrica, has caused a serious leg wound and edema on my right leg. The wound was deep. It is better but not fully healed. I have stopped the medication. I am dealing with my pain. I see the pain doctor in November.
I have felt attacked the last few months. I am praying through it. God didn’t promise he would protect us from suffering. Yet he asks us to seek comfort in him. I slept a lot and while I slept I listened. Even though there were both physical and emotional painful moments I am still breathing. There are solutions, some will make my life a bit more complicated, but there is a reason these things happen. I am rethinking, replanning, and choosing wisely how I walk my path. All things are possible with God. That is an echoing voice in my head.
Be well my friends….
Please wait...